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January 31, 2004

A quiet Saturday

I've spent a quiet Saturday today to balance yesterday's adventures. We began Friday morning with a visit from the plumber who came to deal with a blocked drain in the basement. My task was easy, just stay in bed with canines out of harm's way while my mother oversaw the work. Then we set off for Wellspring, a cancer support centre in Oakville, where Mom and I both enjoyed a relaxation session with several other cancer patients and caregivers. A nice lunch out on the way home, then a rest until the final effort of the day -- a visit to my family doctor to shed my surgical staples, ouch! Having survived all that, I feel quite ready to welcome visitors now beyond immediate family.

January 29, 2004

No laughing, please

Yesterday was all about pain, hence no post from the patient. I suspect it was, at least partly, my punishment for some reckless laughter Tuesday night. Contrary to the common belief that laughter is good medicine, in my case, belly laughs are to be avoided at all costs, at least until I heal some more. Today things look brighter and feel better. It's a treat to be snug inside in January, now accompanied by an exotic tropical anthurium from my daughter -- it reminds me of Hawaii -- and a beautiful arrangement that sings of spring with tulips, lilies, roses and loads more from the McKays. Wishing you all blooming visions.

January 27, 2004

Back in the real world, sort of

Hello folks!
Yes, it's me, the patient, finally posting my own update. Many, many thanks to all of you for your messages, comments, calls, flowers, prayers and just good vibes you sent along to help me through this. My continuous gratitude goes to Bob, the best web guy and husband, and my mom, simply the best mom, who are still taking very good care of me at home.
Next comes the really boring part, several weeks of doing almost nothing, but I can curl up with a warm doggy by the fire and read a backlog of postings from the EAC discussion list if I get desperate. Regrettably, I can't use the webcam yet because -- would you believe it -- the beta of iChat expired! Looks like I'll have to take the plunge and go to Panther -- now there's a timewaster, upgrading software. Love to all, Lynda

January 26, 2004

Sprung!

Monday Morning, Day Four:

Lynda called early this morning to say that they're sending her home today. Who knew? Apparently they were just waiting for the worst possible weather forecast. So I'll be braving the squalls to get her home safely by this afternoon.

Update: home and safe by 11am, patient is sipping comfortably... I expect you'll hear more from her and less from me in this space, now that she has access to the Internet again.

January 25, 2004

Day Three

Sunday, third day in the hospital.

Just returned with Doreen from visiting our favourite patient. And delighted to say she's doing better than ever. She's been prowling the corridors, at first with her "Christmas Tree" rolling IV stand, but most recently she's not so encumbered, the IV drip (and self-administering morphine) now being discontinued/disconnected, in favour of Percosets on request.

She was in the shower when we arrived, and feeling better than ever.

However, she's still very weak, talks very quietly, and needs to nap frequently. Technically, she's still on "clear fluids" but has managed to cadge a bit of milk from her roomie, so as not to be forced to drink her tea black.

She has quite a row of staples which she refuses to show us. They'll be in a week or ten days, we think.

No word on when she'll get sprung, and at this point she's still not up to visitors. Partly because she thinks she looks bad, but she totally doesn't, she looks great.

Stay tuned, thanks for reading. Comments welcome -- to add a comment or read others, click the "Comments" link below any entry.

Bob.

January 24, 2004

Milestones

Saturday, Day Two at the hospital, and a few milesones to mention:

(1) When I arrived this morning Lynda was just being helped back into bed -- she'd been encouraged to sit up in the chair by the window, where she took in the view of Queen's Park. A milestone indeed, but left her whacked for a while.

(2) Had to be unplugged for this next milestone, but with a little help from the nurse and the husband, Lynda managed a quick trip to the loo. She was left to her own devices once she got there. And again, naptime followed shortly after.

(3) Lunchtime arrived, and with it -- comprising the first sustenance besides ice chips -- lunch! Tomato soup, apple juice, jello. Ambrosia!

(4) Served with lunch, but being assigned its own milestone due to its dramatic effect on the patient, came her first post-op cup of tea. You could actually see it energizing and reviving her. Her words after the first sip, "Ahhh, that's it, I'm gonna live!"

(5) Lynda was able to speak briefly with her mum on the phone, and also with Evan. We tried to get Claire to call, but evidently she had trouble at that moment. Probably by now they've connected. Again, each conversation is work, and precipitates a nap.

(6) Before I left, I offered to help her up to her feet, which they encourage to speed recovery and reduce the chance of complications. Once that was accomplished, we enjoyed our first post-op slow dance. Now I'm gonna live...

Thanks for all your good wishes -- if you're reading this, you're helping.

Bob

January 23, 2004

Long Day

The alarm went off at 5:30 this morning, after not quite enough sleep. Lynda was on no-fluids-whatsoever since midnight (and no food for two days) so I felt bad gulping down a cup of tea in front of her before we left.

We arrived promptly at 7:00 am, as scheduled, and were passed from hand to hand, room to room, answering similar questions multiple times (which is somehow both annoying and reassuring). I finally had to leave her in the clutches, er, care of the system by about 8:50, 10 minutes before the surgery was due to start.

It was close to 1pm before I got word in the waiting room that she had left recovery and was in her room, and had the doctor been to speak to me? Ah, no, he had not. After waiting the suggested 10 more minutes (5 minutes really, I was anxious by now) I raced off to find her room, but nobody was around at first who could tell me what her room number was -- so I stalked the halls like a madman until someone pointed me to her room. Then of course they "weren't quite ready for me yet" so I had to cool my jets in the waiting room again for 10 minutes.

Ya, ya, poor me, what about Lynda?

Well, I was pre-visualizing the worst, and was therefore pleased that she looked not bad at all, lovely as ever in fact. I'd have married her all over again at that moment. It was very very good to see her.

The surgeon stopped by later (actually I met him in the corridor, not sure he was even headed to our room) - apologized for not letting me know how it went -- he apparently forgot.

How it went, he says now, was great. The MRI and the pathology suggested -- and the surgery confirmed -- that it was a different "type" of tumour than they thought, a type which is less inclined to spread beyond the uterus. And indeed it did seem confined to within the uterus, though very large. Along with the uterus, lymph nodes in the area were also removed -- these looked okay, but will need to be studied, as will some other bits they took out, to help determine if there was any spread of the cancer.

This post-op pathology wil determine whether radiation is needed. We won't know that for at least three weeks, and she would be sufficiently recovered from the surgery for at least three weeks, so we'll cross that bridge down the river, as it were. My feeling is that radiation is still likely, but a little less likely than we thought before.

Lynda was deeply asleep when I left her this evening, had been for an hour or so, and hopefully will be through the night. Prior to that she was responsive, coherent, and did I mention lovely? But very very weak and in a fair bit of pain. She has a little button she can press to dispense her own morphine, a small dose every five minutes at most. She said it was all she could do to just press the button. I gave her ice chips (all she was allowed for now) at frequent intervals; she would swim up into consciousness and sink down again fairly regularly.

She has a phone if she feels up to calling out, but I don't expect that will happen until at least late tomorrow or perhaps Sunday. I don't expect she'll be up to visitors either, unless her stay becomes more protracted than we expect, as her strength recovers.

I'll be back in to see her tomorrow (Saturday), and will post any new developments here.

Bob.

January 22, 2004

Solidarity is the key

Lynda is forbidden from eating solid food until after her surgery, which is still on tap for tomorrow (Friday) morning at 9am. As an act of solidarity, I'm joining her in the clear-liquids-only diet, more or less (milk in my tea). Not sure I'll make it through dinner (or lack of), but we'll see.

Next post here, by me, will be after the surgery. Some of you may hear news by phone before I get a chance to update the site, but do check here too as there may be more details to share.

Meanwhile, this (only slightly modified) MRI screenshot may be of interest to the inquisitive medical mind. (click here)

January 20, 2004

Last Meal

Today is my last day for regular food for a few days, so Mom and I went out for lunch -- thanks, Mom! -- and it was very hard to select something decadent, yet healthy. I feel a bit reckless given my situation, but, on the other hand, I feel the need to preserve what health I do have as I'm going through so much trouble to fix what isn't healthy.

January 19, 2004

Welcome to Lynda's Health Watch

Check back here from time to time for all the news that's fit to print about Lynda's current level of fitness. I may even post one of her MRI screenshots, but have to clear that with the patient...